Cutting Edge Research on vEDS
Vascular Ehlers-Danlos Syndrome Research Collaborative Study.
-
The goal of the Vascular Ehlers-Danlos research collaborative study is to compile the most comprehensive record of vEDS patients in order to study the natural history of the condition and immediately answer pressing questions and foster future research.
-
Launched by Dr. Sherene Shalhub and Dr. Peter Byers
-
The first stage of the campaign is to enroll 1,000 patients with genetically confirmed vEDS.
-
As the study expands, UW Medicine and other researchers will use the information and patient participation to study vEDS and better understand the disease and improve treatment.
Logo and information taken from website : vEDS
​
Get Signed Up!!!
Click the Link for more info: https://app.mobilecause.com/vf/vEDS
HYPERMOBILE EDS GENETIC RESEARCH NETWORK
​
The Elders-Danlos Society received an anonymous $1 million gift to kickstart cutting edge research into the genetic composition of hyper mobile EDS. Research is being undertaken by top geneticists aroundd the world, including Raymond Dalgleish, PhD from Leicester University, UK.
​
Click the Link for more info: heds-genetic-research-network
​
Clicking the link "Give Today" allows you to access the Elders Danlos Society donation page.
​
"With your help, The Ehlers-Danlos Society and our affiliated scientific researchers and medical professionals are preparing the next phases of Ehlers-Danlos research. We are determined to bring hope to those living with Ehlers-Danlos syndromes and related disorders. With each new discovery, their lives and the lives of their families will improve through better, more consistent diagnosis, management, and care." EDS Society
​
Donations allow the funding of research into numerous variations of EDS.
