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Living with vEDS can be difficult. If it is not already known within you family it can be difficult to get diagnosed, and dealing with the disease both practically and emotionally can be challenging. It may be difficult to come to terms with the diagnosis, and it may cause anxiety and worry in you and the people around you. Finding a support team can be difficult, but it is necessary to the management of the condition as well as your metal health. It also provides the necessary learning curve of learning about your condition and how to effectively manage it.
EDS cannot be cured, but it can be monitored and managed. Good management can improve your quality of life greatly and reduce the number of complications you have.
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